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About Us

OUR STORY

 

In December 2022, Diane’s world changed forever when her 17-year-old granddaughter passed away unexpectedly from Marfan syndrome. In the midst of her grief, Diane found peace and healing in her studio, pouring her heart into various creative projects – especially fused glass.

Through this process, she discovered the therapeutic power of c

 

In December 2022, Diane’s world changed forever when her 17-year-old granddaughter passed away unexpectedly from Marfan syndrome. In the midst of her grief, Diane found peace and healing in her studio, pouring her heart into various creative projects – especially fused glass.

Through this process, she discovered the therapeutic power of creating and wanted to extend that same sense of comfort and community to others. That vision became the foundation of our nonprofit – a place where people can come together, express themselves, and find solace through creativity.

We are honored to share this space with you and hope to inspire healing, connection, and joy through every workshop and project we offer.

Our staff

DIANE, LINDSEY & SARAH

Marfan Syndrome

Marfan Syndrome

Marfan syndrome is usually an inherited disorder, very few develop spontaneous Marfan Syndrome. Marfan's affects the connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton.

People with Marfan syndrome are usually

Marfan syndrome is usually an inherited disorder, very few develop spontaneous Marfan Syndrome. Marfan's affects the connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton.

People with Marfan syndrome are usually tall and thin with unusually long arms, legs, fingers and toes. The damage caused by Marfan syndrome can be mild or severe. If your aorta — the large blood vessel that carries blood from your heart to the rest of your body — is affected, the condition can become life-threatening.

Treatment usually includes medications to keep your blood pressure low to reduce the strain on your aorta. Regular monitoring to check for damage progression is vital. Many people with Marfan syndrome eventually require preventive surgery to repair the aorta.

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